Patients & Families

Welcome to the area for Patients and Families

A cleft or craniofacial condition is present at birth but health professionals provide care, support and advice all the way into adulthood. Interacting with healthcare professionals can be daunting for patients and families because of the large team involved and the complexities of the staged treatment pathways.

The CFSGBI is the organisation representing multidisciplinary healthcare professionals who have specialised in the care of patients born with cleft and craniofacial conditions in Great Britain and Ireland.

This area of the CFSGBI website for Patients and Families provides information and links to organisations that can provide support. We aim to help you to understand the set-up of cleft and craniofacial services by helping you to view the geographical location of the hospital units, virtually meet the team of professionals and a glossary to demystify the medical terms in common use.